We present an update of the frequency reported in Colombia of patients diagnosed with HAE, as result of an ongoing project of the first Colombian record of this disease.
Methods: A questionnaire on the diagnosis, treatment and current control of patients with HAE, was completed by allergists and immunologists (n = 14) of Colombia.
Results: 44 patients with confirmed diagnosis of HAE were reported. The average age of onset of symptoms was 23 years old, with an average age at diagnosis of 37 years. 88.23% with positive family history for the disease. 62% of patients are currently in maintenance treatment: 48% with danazol, tranexamic acid 12.07%; 38.9% of patients used Icatiban for handling the acute crisis. In this group of patients, 95% had diagnosis of HAE type I and type II HAE 5%.
The distribution of patients by region is as follows: 13% of patients living in northern Colombia, 23.9% belong to the Northwest, 36.9% live in the Midwest and 26.08% are in the northeast.
Conclusions: HAE is a rare disease but that could cause death by an acute attack, therefore it is important that the patients have the appropriate rescue therapy. This data has been achieved thanks to the collaboration of colombian allergists who have shared their patient medical records for the national HEA statistical data